Monday, April 28, 2008

Menigittis-Not so much fun!!

It is good to be back in the world of the living.  I came home from my last visit to the hospital on last Wed. April 23.  It was a long stay of 8 days of unexpected pokes, prods, MRI's, CT's, PICC line and antibiotics.  I know Michelle was great in relaying my status, thanks girly!  I never imagined when we took off to San Diego that a couple of hours later I would have my doctor putting a syringe into my incision site and pulling out 3 syringes of fluid.  I kinda figured we were in trouble at that point.  I was told to get some lunch (Mexican of course) and then come back to get admitted to the hospital.  The lumbar drain was the hardest.  I was so sick.  I was in so much pain and could not keep any food down.  Vomiting while your head feels like 100 pounds gives all new meaning to the sport of throwing up.  My eyelids even hurt to open.  Art was a trooper staying by my side holding my vomit pan and stroking my hair.  I am sure it was tough on him to see me suffer.  He was an amazing advocate making sure I was taken care of while sleeping in a chair that barely reclined.  Mom Judi and Sylvan came for a visit although I barely remember seeing them I was so sick.  My friend Stephanie, who is also a nurse, came to relieve Art for a night.  She was like nighten Gail and was there to see some of the worst of it.  I was given a PICC line to administer IV antibiotics for 3 weeks at home after the doctors figured out which antibiotics were working.  I got the big guns Vancomycin and Merrem.  Two of the strongest out there.  I give my self 5 infusions a day which is old hat because of the nursing gig.  I kinda like doing my own IVs. Art learned for back up and is really good too.  A home health nurse came by the day after I got home.  He was a nice,  young male nurse which reminded me I will be BIG 40 in November.  So, I was home for three days and started to spike a fever of 102.1.  Which I found impossible on the antibiotics I was on.  So, off to the ER we go for a Saturday visit.  At this time I am pretty much besides myself and crying while we head to the hospital.  I get there and the Infectious disease doctor said that my white count was normal,  thank God,  and he thought I was having reactions to the heavy duty antibiotics.  That I could live with, although my incision site had a little increased fluid build up again.  I now take tylenol and benadryl before each dose, so I am basically a walking zombie all day.  But at least I am home and can smile.  My appetite is good, putting on more weight than I probably should.  But I need the nutrition to heal (sounds justifiable to me).  Fatigue of course is a battle and I am noticing a ringing in the deaf ear.  I may have to live with the irritating ringing-cant get that song "ring my bell" out of my friggin head.  The kids are great!  Mom Judi and Sylvan kept the kiddos on a minutes notice for 8 days.  Judi kept up with the laundry and cooked a homemade meat loaf when I got home.  What angels! Thank you everyone for the continued support.  Art read me all the blog responses while I was in the hospital and they really gave me strength.  I had beautiful flowers sent from the Haddad's, meals by mail (really cool and really good) from Lara B. and a darling little dress from Kim S.  I can not believe all the love that this whole experience has brought into my life.  I did not realize I meant so much.  I go back to San Diego on the 6th to see my surgeons and the infectious disease doctor.  I really hope to be able to close this chapter of my life soon and give back to my family and others.  All we really have is God, today, love, family and friends.  I am feeling an abundance of all 5 right now.

8 comments:

Anonymous said...

I am so glad you are at home now. However, I am still at school working on TAKS -ALT, a phenomenon only a TEXAS Teacher knows about. I sure do love you my dear and I am so proud you are brave like your Aunt Cathy. You know Dara, Art is great in my book. He is a man who is not afraid to hold a "Vomit Bowl" as we call it in the Hanson family. Ours are usually green and Tupperware!! I love you Thiiiiiiiiiiiiiiis much.:)

Kay said...

My oldest daughter will do TAKS tomorrow & Wednesday!! Dara, I am so glad that everything is OK & you didn't have to go back into the hospital! I go back for another CT scan and possible "draining" tomorrow. I'm still your PICC twin - I am doing vancomycin & invanz. Hopefully soon this will all be behind us...a distant memory! :o) I hate to be the barer of bad news, but the "ringing" could always continue -- the GOOD news is that you get used to it and then you don't really notice it!!

Anonymous said...

SWEET DARA, I AM SO PROUD OF YOU!!! THANK YOU ART FOR TAKING SUCH GOOD CARE OF OUR MUCH LOVED ONE!!!!!!!!!!!!! HEY, IT SOUNDS LIKE YOU ARE ON THE DOWNSIDE OF ALL THIS MESS AND TAKING GOOD CARE OF YOURSELF!!!!!! YOU ARE SO BRAVE. I DON'T KNOW IF I COULD STICK MYSELF-BUT THEN AGAIN I AM SUCH A BABY WHEN IT OOMES TO NEEDLES. HEY, THE RINGING YOU'LL HAVE AN EXCUSE TO TUNE PEOPLE OUT. LOVE YOU SOOOOO MUCH---AUNT NANCY

Anonymous said...

You are an amazing inspiration! I love you dearly sis! michelle

Anonymous said...

Darlin Dara,
You give a whole new meaning to the word courage!!!
More cook'in? bring it on.
More laundry? bring it on, now you know how much I love you cause you know how I feel like laundry....
We love you sooooooo much!!!
Mom J.

Anonymous said...

Hey Girlie Girl ,
I've been keeping up with your blog, been talking to the tech's and Dr's here and it sounds as you are in good hands. Your are in my thought all the time. I know you need your strenght to concentrate on these battles you are overcoming, I'm so proud of you but then I wouldn't expect any less. Willy, menigitis, etc have no idea who they were dealing with.

We LOVE You tons
THE PEREZ FAMILY
Idania, Jose, Kassy, Estevan, Sabrina and even Layla

Anonymous said...

I'm so glad to hear you are feeling better! You and your family have been in my prayers. The ringing may not go completely away, but you really do get used to it. What bothered me the most about losing my hearing on one side is that it is so hard to locate where a sound is coming from. My email is stacy.james@verizon.net if u ever want to email. My kids were 2 & 4 when I had mine. They are 9 & 11 now and dont remember amy of it. At the time, I was sure they were going to be scarred for life--but kids are resilient. The silver lining is that brain surgery is hard to top. For a long time, any time I wanted my sweet hubby to do something for me, I would say, "well, I did have brain surgery". :-) God bless you!
Stacy

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